Participant age range: 3
Ethnicity: African American
Contact email: email@example.com
Contact phone number: 404-785-7600
Marcus Autism Center is conducting a genetics study to learn more about differences in risk factors for autism spectrum disorders (ASDs) in African American populations.
What is the goal of the study?
This study aims to examine how genetic risk factors of autism may be different in African American families. The main objective of this research study is to examine genetic variables that may be unique to African American families with ASD and determine behavioral and environmental factors that may contribute to delays in diagnosis and access to care.
Who can participate?
You may be eligible if your child:
Is between the ages of 3 and 21 years old and has an ASD diagnosis
Is black or African American
Has no known genetic disorder (other than 16p and 15q mutations)
Has never participated in a genetics study on ASDs
What will my family be asked to do?
As a part of this study, you will be asked to complete questionnaires and interviews regarding your child’s medical history, behavior, social skills and communication skills. Your child will undergo some behavior and cognitive (intelligence) testing.
In addition, a blood sample will be taken from your child, both biological parents and any sibling older than 3 years old. This blood sample will be used to examine genetic factors that might be unique to African American families with ASDs.
How much time will this take?
The entire study will last about eight hours that will occur over a two or three day visit, whichever is most convenient for your family.
What will I receive for participating?
A $50 gift card will be provided for each blood sample taken as our way thanking you and your family for participating. Further, the clinicians and psychologists will sit down and discuss with you what they saw during each assessment with your child.
Principal investigator: Ami Klin
Avi Gates, an active, independent 3-year-old, does not have autism. But for two years, she was a participant in an autism research study aimed at changing the very nature of the disease. Learn why Avi's parent's chose to participate in autism research.
Marcus Autism Center is a subsidiary of Children’s Healthcare of Atlanta.
1920 Briarcliff Road Atlanta, GA 30329-4010Operating hours are Monday-Friday, 8:00 a.m. to 4:30 p.m.
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